I received a gift today which will make my life more enjoyable as I continue to live with the unrelenting progression of Multiple Sclerosis. A fellow blogger who calls himself the ‘Wheelchair Kamikaze’ very aptly describes MS as creeping paralysis. According to his research, Creeping Paralysis was the original name of this daunting illness, before it was given the less disturbing and very sanitized name of Multiple Sclerosis. For who the heck knows what ‘multiple’ ‘sclerosis’ really is? I usually explain it to people by suggesting that they think of the brain being turned into a swiss cheese. This explanation is descriptive in the extreme and also not very kind. But after reading Marc’s post about the frustrations our shared illness brings, I shall use ‘creeping paralysis’ instead. The name accurately presents the condition without exaggeration or hyperbole.
Well, I know Multiple Sclerosis very well, in fact so well that after 18 years of acquaintance I know that the original name holds true. And yes, Creeping paralysis it is! And there is absolutely no doubt about that. Eighteen years ago I was strong and I participated fully in the richness of life. I had built a challenging career, I was doing my share to make the world a better place through my philanthropic efforts, I had travelled around the world, and after my child had gone off to college, I opened my home to creatures in need of a nurturing home.
And what a difference Creeping Paralysis makes: today I am a recluse who hardly leaves her home. It is difficult to appear dignified when stumbling about and dropping things for no apparent reason. At home it is easier to deal with failing limbs.
She cleverly devised a way to insure that my daily enjoyment of two cups of coffee continues.
A lovely cup with two handles, angled in a perfect way to ensure a firm one or two-handed grip. How cool is that???
And what could be better than a sister’s thoughtful love. Thank you my dear Elke, your gift has brought me joy.